Children and young people with Type 1 Diabetes and their families
Your paediatric team may be able to put you in touch with other families local to you who have a child with Type 1 Diabetes. Social media is a popular way to interact with and meet other families, and there are a wealth of Type 1 Diabetes Facebook groups to access. 2 key groups you may be interested to join are:
The Children with Diabetes UK (CWD UK) online group is a patient-led support group for families of children with diabetes living in the UK. It is run by families of children with diabetes, and provides a forum to discuss all of the personal and scientific aspects of diabetes in children and how it affects families’ lives including achieving good control, awareness about insulin pump therapy, using continuous glucose monitoring (CGM) and getting support for children while they are at school.
South East Coast and London Paediatric Diabetes Network
The National Children and Young People’s Diabetes Network aims to develop a standardised approach to healthcare for Children and Young People with Type 1 Diabetes. The Families with Diabetes National Network is the family voice of the National Network, and in London this group hosts the South East Coast and London Paediatric Diabetes Network Facebook group. The group runs 3 events for families each year, alternating venues around the region.
Call Deborah on 07930 732 882 for information and support
Other useful websites
Diabetes UK holds annual events for families and young people with Type 1 Diabetes. They produce useful resources including sample care plans for school trips, tools for managing exams, and a ‘care in school helpline’ to support with resolving challenges. www.diabetes.org.uk
JDRF hold Discovery days with a focus on research, as well as weekends for families and young people with Type 1 Diabetes. They produce valuable information for schools, including online learning resources and guides for teaching and support staff www.jdrf.org.uk